As I type this post, I’m sitting in the vet hospital, waiting to see my favorite ginger-ninja’s wiggle butt once again.
Don’t panic, Ace is going to be just fine.
At 2:30 AM on early Sunday morning Ace woke Tony & I up with a start; he was having another seizure. This one wasn’t as long as the first, but it was just as scary to watch. I was glad I had Tony with me this time around, he kept me calm and we got Ace back to his normal self, sharing my pillow with me in bed, shortly after it was over.
Another seizure means more tests, more worrying, and more anxieties. We’ve had his blood work checked, [which has been normal], he’s had multiple exams, [he gives the doctors lots of kisses], & we’ve been referred to a specialist to rule out any neurology problems or heart issues – which is what has lead me to the hospital today. He’s currently undergoing a chest X-ray, an echo on his heart, & pending time restraints, an MRI.
If all these tests come back clear, we’ll have our answers to the cause of his seizures: he will be diagnosed with epilepsy.
I was really down about this diagnosis previously; it made me scared to think how long he’ll be around, what side effects he’ll have, etc… But spending time with a girlfriend over the past weekend reminded me to be thankful.
One of my best girlfriends, Karly, has a niece who was recently diagnosed with a rare genetic mutation of a gene called WWOX. She’s just over one years old, and she could very well be one of the only people on the planet who currently has this gene and has the condition she has been currently diagnosed. Doctors fear she won’t live past the age of two, and they are unsure of the direction to go with further treatment, being there are only 3-4 reported pieces of literature to refer to for her future.
I’ve been struggling to sit down and write the past couple weeks, because my thoughts automatically go to Clara, Karly’s family’s little meatball. I’ve been struggling to think of ways to help my friend and her family through the next year. I’ve been struggling to see the why.
I was with Karly this past Saturday night at Natalie’s house. Karly needed some time away, to be around friends, and have a couple glasses of bubbles. Natalie and I reminded Karly we were here for her & her family, we cried, held each other’s hands, and told each other how lucky we were to have one another in our lives. I told them the only way I can makes sense of the whole situation is to make sure we love, unconditionally. Everyday.
To go off of that theme, Karly’s brother in law, Adam, Clara’s dad, said some of the most touching words that have resonated with me the past week:
We are very aware that we are very honored to be Clara’s parents, and frequently find ourselves overflowing with gratitude and meaning in this role as parents to this perfect little soul. Clara really is the purest little vessel of love either of us have ever known.
& with that being said, I’m going to live my life everyday, loving & appreciating.
I know we’re lucky.
xo my pumpkins [fall is coming- back to school posts coming soon! 🙂 ]